Beandri Booysen’s life was a testament to resilience, love, and the power of positivity. Despite facing a rare and heartbreaking illness, she radiated joy that touched thousands of lives. Now, tragically, her journey has come to an end—just days before Christmas.
Beandri passed away at just 19 years old, but her story will continue to inspire those who hear Born in South Africa, Beandri was only seven months old when she was diagnosed with Hutchinson-Gilford Progeria Syndrome, an incredibly rare genetic condition that causes the body to age eight times faster than normal.
The odds of being born with progeria are 1 in 4 million, and fewer than 400 children and young adults worldwide currently live with the condition. Doctors didn’t expect Beandri to survive beyond her early teens. But Beandri had other plans
From the moment she could speak, Beandri refused to let her condition define her. She weighed just 12 kilograms (26 pounds) and bore the physical toll of the disease, but her spirit was limitless.
She attended school, dreamed of becoming a teacher, and even imagined a future where she’d marry and raise twins. She was determined to live like any other teenager, cherishing every moment.
On social media, Beandri found her voice. Her TikTok account, where she posted motivational videos and candid glimpses into her life, quickly gained nearly 300,000 followers.
Her motto, “Be yourself. Love yourself. Believe in yourself,” resonated with people around the world. Through her posts, she not only shared her experiences but also educated others about progeria, spreading awareness and compassion.
A mother’s heartbreak
Just weeks after celebrating her 19th birthday, Booysen faced a sudden health crisis.
”Please pray. Beandri’s heart stopped,” her mother, Bea, shared on Wednesday. “They are trying to get her heart to beat again. Please pray.”
On December 18, Beandri’s mother shared that her daughter had died.
Her message, filled with both sorrow and pride, described Beandri as a “vibrant personality” and the “last surviving person in South Africa with progeria.”
“She was a voice and a symbol of awareness for Progeria and other special needs,” Bea wrote. “She never stopped fighting.”
Tributes quickly began flooding TikTok as news of her passing spread.
”Rest In Peace my sweetheart friend. I will miss you alot,” person shared.
Many others expressed their heartbreak, offering heartfelt condolences to Beandri’s family and loved ones.
Her lasting, final message
Beandri’s life was far too short, but she used her time on this earth to remind us all of what truly matters. She taught us to live fully, to love fiercely, and to appreciate the beauty in every day. Her infectious laugh, her fearless optimism, and her determination to help others will never be forgotten.
Although her family has asked for privacy during this difficult time, one thing is certain: Beandri’s light will continue to shine through the many lives she touched.
As we hold her story close, let it be a reminder to treasure the moments we have and to live with the same bravery and joy that Beandri did every single day.
